RESOURCE LIBRARY

Examples of states that have integrated or are effectively sharing public health data leading to valuable insight into the experiences of children and their families.

Examples of states that have integrated or are effectively sharing public health data leading to valuable insight into the experiences of children and their families.

Visual examples of how to present information around a key question or priority to an ECIDS in order to receive appropriate data that can inform decision-making.

Visual examples of how to present information around a key question or priority to an ECIDS in order to receive appropriate data that can inform decision-making.

Visual examples of how to present information around a key question or priority to an ECIDS in order to receive appropriate data that can inform decision-making.

The goal of data integration is to produce data that can inform decisions and answer questions. Answers to key questions can support the improvement of programs at the local, state,and federal levels. Integrating data into an ECIDS allows Title V programs to get data back from the system to answer key questions and inform priorities. As Title V programs participate in integration efforts, it is important to clearly synthesize which data and/or reports the Title V programs require from the ECIDS.

The successful integration of Title V data into an Early Childhood Integrated Data System (ECIDS) requires a mutually beneficial partnership and demonstration of the value of using integrated data to inform decisions. From the beginning of the collaboration, many data sources forget to communicate their desired output for participation or return on investment (ROI) from the ECIDS. This ROI communicates to Title V leadership that the result is worth the venture into the ECIDS. Leadership from both programs should engage in this conversation early in the partnership to avoid costly updates and changes in the future.

Before Title V programs integrate data into Early Childhood Integrated Data Systems (ECIDS), theymust identify their purpose and vision for sharing. The purpose and vision statement should describe overall goals, primary purpose(s), and aspirations for integrating Title V data into ECIDS. This statementwill guide the Title V program through the planning, implementation, and continuous improvement of the integration.

The successful integration of Title V data into an Early Childhood Integrated Data System (ECIDS) requires supporting families’ desiresto have reasonable control over the sharing of child level data while also integrating data for analysis and research to improve programs and child and family outcomes. Regardless of whether parental consent to share data is required, many data sources consider it best practice to give parents the option to choose if their child’s data are shared with third parties, such as the ECIDS.

The successful integration of Title V data into an Early Childhood Integrated Data System (ECIDS) requires leadershipsupport, whichinvolves an element of co-creation. Through discussion, debate, idea generation, and identification of challenges and successes, Title V programs will understand the benefits of participating in ECIDS efforts, allowing everyone to feel more vested in data integration efforts.

The successful integration of Title V data into an Early Childhood Integrated Data System (ECIDS) requires getting a seat at the table. Title V programs must be able to communicate their value and how their data contributes to the strategic mission of the ECIDS.

Before integrating data into Early Childhood Integrated Data Systems (ECIDS), Title V programs should review the ECIDS data privacy and security plan. Data privacy and security ensure that data are used appropriately and protected against unauthorized access or use according to the agreed upon purposes. The ECIDS data privacy and security plan encompasses all the policies, procedures, and practices addressing the accuracy, reliability, and availability of agreed upon data.

2019 Help Me Grow National Forum Presentation.

Slides from one of AMCHP’s four 2021 Autism Acceptance Month Coffee Talks. This coffee talk took place on April 7, 2021.