What is Centering Lived Experience?
How does SPHARC center lived experience?
Autism Acceptance Month is one example of how SPHARC seeks to always infuse Autistic voices in its work. During Autism Acceptance Month 2021, SPHARC sought to elevate and prioritize lived experience through a series of events that bridged the gap between research and lived experience. Through co-creating a coffee talk series with autistic advocacy organizations and individuals with lived experience, SPHARC learned together with autistic advocates on how to create connections between people with disabilities, their families, and researchers and providers.
The Autistic Faculty is another way that SPHARC centers lived experience. The vision of the Autistic Faculty is to always involve autistic voices in the creation of SPHARC programs, events, media, and other materials. The goal is to co-design programs, activities, and events with autistic people. All of SPHARC’s 2023 Autism Acceptance Month activities were co-designed with the Autistic Faculty.
Coming Soon! Revamped SPHARC Story Wall featuring people with lived experience sharing their stories of navigating systems of care
This image is a screenshot from SPHARC’s 2023 Autism Acceptance Month Virtual Fireside Chat that was moderated by the Autistic Faculty and featured two guest Autistic presenters.
NEW! SPHARC will feature “Celebrating Autistic Joy” content on our website and social media YEAR ROUND
- We want to hear from you about what it means to celebrate Autistic joy. You can share what autism looks like to you, your strengths, special interests, and passions. Submissions can be a video, audio file, written words, or art. SPHARC will highlight these submissions on our SPHARC website and social media.
- This idea of celebrating autistic joy is not meant to negate or minimize any of the difficulties and challenges Autistic people face. Instead, it is meant to shift the perspectives and beliefs of providers that care for Autistic people, anyone that works in the autism and developmental disabilities field, and the general public so that they see that Autistic people are more than just their challenges. That is why SPHARC and the Autistic Faculty created this space for lifting up positive experiences for any Autistic people that want to share them.
- Learn more about this opportunity and how to submit at: https://bit.ly/AutisticJoy2023
“Celebrating Autistic Joy” submissions
SPHARC is excited to share the following submissions received so far through the Celebrating Autistic Joy opportunity: a poem by Hari Srinivasan and artwork from Heidi Lieb-Williams.
Autistic Joy – Hari Srinivasan
Be Supported to Joy
Be supported to joy, is what we need
Empowerment & Solutions, the seed.
For happiness, our hearts will plead.
True want in life, to live in joy.
Can we autistics wake up to Joy…
…every single day of our lives?
An spectrum computer, to be exact
Like lines of code, flawlessly extract
Atypical network, unique way of thought
Algorithms and patterns, precision wrought
All in the Course of Human Events….
All in the course of Human Events
Open your eyes… look within… see the possibilities
The result…. a better human(e) society
Artwork by Heidi Lieb-Williams